Director, Patient Advocacy & Engagemen (Fixed-Term Contract)t

Overview:

Note: This is a fixed-term maternity cover position, running through the end of June 2026. We are open to shape the role for more senior or more junior applicant profiles.

The Director, Patient Advocacy and Engagement, TTR International will report to the Vice President/Head Medical Affairs, TTR International and provide strategic direction and operational oversight of the Patient Advocacy and Engagement (PAE) functionfor the International region.  This role is considered Hybrid.

Responsibilities:

• Responsible for evolving existing, and developing new, relationships with key regional patient advocacy groups, patients, care givers, and relevant communities.
• Develop strategic collaborations between internal and external stakeholders in line with mutual goals to enhance care forpatients.
• Develop initiatives to enhance disease awareness and improve time to diagnosis, as well as educate the patient communityso that they are empowered to actively engage with their healthcare provider in the management of their disease.
• Enhance understanding of the patient, caregiver, and associated communities across the Alnylam stakeholders to supportstrategic decision making that reflects the needs of the community.
• Enable patient input and engagement into regulatory and market access submissions.
• Support Alnylam’s patient-focused culture collaborating closely with legal, compliance, and data privacy colleagues to ensurestrict adherence to local codes and company policies.
• Shape and support the execution of the Medical Affairs strategy as a key member of the TTR Medical Leadership Team.
• Provide strategic guidance and leadership to country PAE leads to ensure consistent, differentiated engagement with thecommunity.
• Managing, coaching, and supporting direct reports (currently one).
• The successful candidate will represent Alnylam in the patient communities we serve and facilitate company events involvingpatients and advocates.
• Provides support for other programs as required.
• This role requires travel approximately 25% of the time.

Qualifications:

• Highest degrees of ethics
• Solid experience in biotech and pharmaceutical industry.
• Experience working with patients, patient organizations and advocates from different countries and cultures.
• Master’s degree or MD/PhD preferred.
• Strategic thinker and problem solver with a passion for innovation.
• Demonstrated ability to develop strong internal and external partnerships and align priorities across the regions and patientadvocacy organizations.
• Cardiac disease experience would be welcomed.
• Deep understanding of legal and compliance best practices, codes, policies impacting this line of work.
• Excellent presentation, interpersonal and communication skills.
• Ability to thrive in a fast-paced, network operating or matrix environment; able to prioritize high-impact projects; works with asense of purpose and able to roll up their sleeves and execute.
• Proven ability to develop and execute strategically aligned advocacy plans; engage, support and mobilize patientorganizations and communities.
• Proven ability to manage budgets and thrive within compliance operations frame works.
• Multi-lingual abilities a plus.
• Location preference would be Switzerland, The Netherlands, The UK. But would consider candidates located in Europeancountries.